Thursday, November 24, 2011

Happy Thanksgiving!

Happy Thanksgiving to everyone!

I hope you all enjoyed a wonderful day with family and friends and lots of yummy food :)

And for anyone Black Friday shopping I wish you good luck; you won't catch me lining up at Best Buy tonight... I have to work at 7am tomorrow, so wish ME luck and wakefulness for my whole eight hour shift full of hungry tired shoppers.

I had a great day with my family and friends! I for one am thankful for many things this holiday season. My health and the health of my friends with and without Narcaplexy, my family for being supportive of me every day with my sleepiness struggles and regular teenager-in-her-senior-year sturggles, my friends for keeping me awake and making me laugh until I have cataplexy attacks... then making sure I'm okay and making me laugh some more, and everything else that's going well in my life.

What are you thankful for?

Saturday, November 19, 2011

Vote for the Narcolepsy Network

Hey Facebookers,
Take a few minutes of your time and help a cause that needs your support! Vote for the Narcolepsy Network to win funding to help with Narcaplexy research, education, and and prevention!
*Quoted from an e-mail I recieved from the Narcolepsy Network*
We need you to help Narcolepsy Network get a share of the $3,000,000 being offered to non-profit organizations by Chase Community Giving.  It will not cost you anything except a few minutes of your time.

To help us get this funding all you need to do is log onto your Facebook account, find the Chase Community Giving page, search for Narcolepsy Network and cast your vote.  I also urge you to contact all of your Facebook friends and anyone else you know and ask them to vote for Narcolepsy Network to get this much needed money.

We can use these funds to:
  • Create and promote public and professional communication and awareness campaigns about Narcolepsy, Hypersomnia and related Sleep Disorders
  • Advocate for people who struggle to live and support themselves while dealing with these disorders
  • Fund research into the causes, prevention, diagnosis and treatments for these serious conditions
  • Educate physicians, nurses, teachers, public safety workers and many others about Sleep Disorders
  • Foster support for people with these illnesses and those who care for them and about them.
Please act now, voting closes on November 22, 2011.

Ramon Werbeach
Vice President,
Board of Trustees,
Narcolepsy Network

VOTE HERE and ask your friends to vote too! Thank you so much for your support!
Chase Community Giving

Wednesday, November 16, 2011

Julie Flygare Talks About Life With Narcaplexy on NBC!

You've read my posts about Julie Flygare a.k.a. the REM Runner before (Meeting The "Other Julie"), and now she's found her way back into the spotlight once again, finding new ways to educate the world about Narcolepsy and Cataplexy. On paper, you never would guess that she struggles with anything other than deciding what amazing thing she should accomplish next. From marathon running to memoir writing, she pretty much does it all! Watch her latest Narcaplexy awareness effort here; an interview she recently did with NBC News. Then make sure you check out her blog--she always has something interesting to talk about there :) 

Monday, November 14, 2011

Just Received My ACT Scores!

GOOD NEWS!! I got my old ACT score back! Last March after I got back from Italy (so about 2 and a half weeks after the initial MTV filming, with the sledding and bowling alley and such) I took the ACT like all 11th grade students do. My score unfortunately dropped four points from the 27 composite I'd gotten in Spring of my Sophomore year. I was absolutely crushed, especially because I know I could do better if my school district gave me an IEP like my neurologist 'prescribed'. So after some time and more drugs, I tried again  and here is my result! I'm so excited! :D

I know this still isn't so stellar. I mean, the English score is ONE POINT AWAY FROM PERFECT! But Science (the LAST test of the day, so I was kind of out of it...) could definitely use improvement.

Oh well, let's just hope it's enough for Baldwin-Wallace College!

Wednesday, November 9, 2011

Watch It Online Now!

Woohoo! I finally got to watch True Life: I Have Narcolepsy! I think MTV did a great job of putting it all together; thanks guys! So check it out below and let me know YOUR thoughts on it.

Tuesday, November 1, 2011

True Life Airing Again on Saturday!

FINALLY! True Life: I Have Narcolepsy (co-starring me :D) will air on MTV again this Saturday November 5th at 3pm! Set your DVRs everyone! :)

I, ONCE AGAIN, will be unable to see it--I work from 3-10pm on Saturday! Maybe I'm not meant to see myself on television... :(

*subject to change, knowing MTV*

Happy Halloween! (for you, at least...)

So I for one think that Halloween is the most amazing holiday ever. Anyone else with me? It's the only day of the year that it's acceptable to dress up in costumes and party all night long (or go door-to-door asking strangers for candy, if you're in that age group or will do anything for sugar). I hope everyone had a great night last night; all weekend for that matter! I'd love to say this Halloween made up for last year's crappy one (it was right after my car accident and I had Acute Stress Disorder  (pre-PTSD) and was depressed like crazy) but this year's wasn't too great.

I took my last methylphenidate (Concerta) Sunday morning at work and knew that I was in for trouble on Monday. Because it's such a controlled substance, my mom has to call it in to the clinic and wait a few days until they call her back that the prescription is ready. Then they have to see her ID to prove its her, and they close at like 5! So even though I warned her a week ahead of time that I was running low, she couldn't pick it up yet.

Monday morning I felt okay at first, eager for Halloween (I was a witch) but by 9:30 my eyesight was getting blurry and my focus was slipping. By 10:30 I was snappy and depressed, sleeping through classes and eventually by 4:00, crying over EVERYTHING. I felt so miserable and broken without my medicine, I can't believe one missed day could affect me so much. Thank goodness, mom saved the day and after she left the ER (she has MRSA under her skin, yuckk) she picked up her meds, mine, and was waiting with them when I got out of my college psychology class (that I completely slept through!).

But on a lighter note, I feel SO much better today :)